Advertisement

Living with Tourette's: 'People think it's just swearing'

Make-up artist James MacInerney said he had 'signs' of Tourette's since he was four or five
Jack Quann
Jack Quann

14.12 28 Jun 2023


Share this article


Living with Tourette's: 'Peopl...

Living with Tourette's: 'People think it's just swearing'

Jack Quann
Jack Quann

14.12 28 Jun 2023


Share this article


One man is using his social media channels to help educate people around living with Tourette's.

It comes after Scottish singer Lewis Capaldi opened up about his struggle with the condition.

Make-up artist James MacInerney told Lunchtime Live he had 'signs' of Tourette's since he was four or five.

Advertisement

"My diagnosis was in my Leaving Cert, that was when I actually was certified to have Tourette's syndrome," he said.

"It's a neurological disorder: so essentially you can have vocal or motor ticks.

"Sounds or words, and they have to be for multiple [times] each for a period of time for it be certified".

'Humming and swallowing'

Mr MacInerney said there is a misconception around the condition.

"People always think it's just swearing, as that's what's always depicted a lot sometimes in the media.

"That's what's known as coprolalia - I don't have coprolalia.

"90% of people living with Tourette's actually don't, it's a minority within the community".

He said his condition developed in different ways.

"I was doing humming, swallowing with compulsive sounds - grunting - and then blinking my eyes.

"Then this stim, which is involuntary need of stimulants, in my neck.

"I started to turn quite extreme to the far right, similar to Lewis [Capaldi]'s shrug of the shoulder.

"That's really become apparent to me in the last year and a half".

'My vulnerability can be strength'

Mr MacInerney said coming to terms with the condition takes time.

"It has taken me 20 years to come to terms, and to find ways to live my life with the impact of the effects of having Tourette's," he said.

"I think that's where, now, it's so good that there's more of a conversation being highlighted on it".

His series on Instagram, called Tourette's Tuesday, sees him try to educate others on the condition.

"I'm now at a place where I know my vulnerability can be a strength," he said.

"I've learned a lot to help educate the general public far more on what it means to truly live with Tourette's, and how it actually impacts families and friend's lives.

"It can be effective [sic] towards so many people, stemming from the actual person that might physically live with it.

"That takes time," he added.

Listen back here:

Main image: Split-screen image shows make-up artist James MacInerney and singer Lewis Capaldi

Share this article


Read more about

Compulsive Sounds Coprolalia James MacInerney Lewis Capaldi Living With Tourettes Lunchtime Live Swearing Tourette's Tourettes Tuesday

Most Popular