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"I'm positive, if I live long enough, there's a cure for SMA"

Ivan spoke to Jonathan O'Grady, who has SMA, about access to life-altering treatment Spinraza

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19.00 26 Jun 2019


"I'm positive, if I live long enough, there's a cure for SMA"


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19.00 26 Jun 2019


Adults with a rare degenerative illness say they’re being left to suffer after the HSE excluded them from access to a “miracle drug”.

The HSE recently announced it will fund Spinraza – the only treatment for people with rare muscle-wasting disease spinal muscular atrophy (SMA) – but only for patients under 18.

Today on the Hard Shoulder, Ivan spoke to Jonathan O'Grady, who has SMA type 2. Jonathan spoke about the campaign for access to Spinraza, as well as the adults who are now left in limbo without access.


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Health Hse Spinal Muscular Atrophy Spinraza

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