Recently Claire spoke to Craig Coady about 16 year old son Paudie, who is living with Friedreich's Ataxia. Craig lost his 13 year old Rory Coady last September to the condition and is calling for action on access to new medicines.
He also spoke about medicine like Skyclarys not being available to the Irish public. Speaking to Claire was Mother Elaine Pollard who's son Oisin has Friedreich's Ataxia. Also talking to Claire Padraig O’Sullivan, Fianna Fáil TD for Cork North Central.