Advertisement

For Eva by Vera Twomey

When Vera Twomey's daughter Ava was diagnosed with Dravet Syndrome, a rare form of epilepsy that ...

Share this article

08.56 18 Aug 2019


For Eva by Vera Twomey


Listen to this episode


Share this article

08.56 18 Aug 2019


When Vera Twomey's daughter Ava was diagnosed with Dravet Syndrome, a rare form of epilepsy that causes multiple seizures a day, the family's life was thrown into chaos. Where they hoped to find treatment and support in the medical system, they found only frustration. The only medication that would have any effect on Ava's condition is a form of medicinal cannabis that was unavailable in Ireland.

Thus began the family's fight to alleviate their daughter's suffering and give her a chance at life. Faced with an intransigent system and political establishment, Vera's campaign eventually culminated in her decision to walk from Cork to Leinster House in Dublin in protest to ask health minister Simon Harris for help in person. For Ava tells the story of the campaign for Ava's medication and the family's move to the Netherlands in order to legally access the medication that would save her life. It also pays tribute to the people who helped Vera achieve her goal. Above all, this is a moving story about the lengths a parent will go to for their child's health and happiness.


Related Episodes

Being born with half a heart -...

00:15:21

Being born with half a heart - and raising money for Crumlin

The Hard Shoulder

00:15:21


How have the Muppets been able...

00:07:03

How have the Muppets been able to stand the test of time?

The Hard Shoulder

00:07:03


Kids Health Check: Support aro...

00:12:56

Kids Health Check: Support around a tougher Christmas

The Hard Shoulder

00:12:56


The legacy Chris Rea leaves be...

00:07:57

The legacy Chris Rea leaves behind

The Hard Shoulder

00:07:57