Michael Staines
Michael Staines

13.32 11 Apr 2019


Share this article


Protesters have gathered outside Leinster House calling on the Government to more to support people living with Parkinson’s disease.

The demonstration was held to mark World Parkinson’s Day.

The Parkinson's Association of Ireland (PAI) said the HSE only provides five specialist nurses for the 12,000 patients with Parkinson's Disease in Ireland.

Just two of those are located outside Dublin.

Meanwhile, Parkinson’s patients must travel to the UK to access life-changing Deep Brain Stimulation surgery and the PAI is warning that the current system is under threat as a result of Brexit.

Parkinson's Protesters Parkinson's protesters gather outside Leinster House, 11-04-2019. Image: Andrew Lowth

Speaking at the demonstration this afternoon, PAI chief executive Paula Gilmore said it can be very difficult to access specialist care.

“If you live in Dublin, you have some access,” she said. “If you live outside of Dublin, you have no action to a lot of services.”

“It varies from county to county. Some people have no neurologist; they have no neurology department and they have no access to Parkinson’s nurse specialists.

Funding

She said that, unlike other charities that provide services for patients with neurological illnesses, the PAI doesn't receive any government funding.

“We badly need it if we are to be able to speak on behalf of our members, young and old, and offer them information and advice,” she said. “There is such a shortage of both.”

Parkinson's Disease

It comes as a new study in the UK found that one-in-five people diagnosed with Parkinson’s have been 'accused of being drunk' because of their symptoms.

The Parkinson’s UK study found that around 22% of respondents had faced accused they were under the influence because of poor balance or slurred speech.

A quarter said their symptoms had been misinterpreted as an intellectual disability - and 10% said they had been laughed at.

Nearly 60% had cancelled plans or avoided social situations because they were embarrassed or scared about how people may react to them.


Share this article


Most Popular

Live: Title

Now playing

00:00:00 / 00:00:00
Added to queue
Removed from queue

On Air

Share

Share


Up next

Episode title
Show
Duration

You currently have no podcasts in your queue.

Go to podcasts

On Air

Best Of Newstalk

Best Of Newstalk

00:00-07:00

Share

Up next

In Case You Missed It

In Case You Missed It

07:00-08:00

Share

NEWSTALK BREAKFAST WITH SUSAN...

NEWSTALK BREAKFAST WITH SUSAN KEOGH

08:00-09:00

Share

THE HOME SHOW WITH SINEAD RYAN

THE HOME SHOW WITH SINEAD RYAN

09:00-10:00

Share

DOWN TO BUSINESS WITH BOBBY KE...

DOWN TO BUSINESS WITH BOBBY KERR

10:00-12:00

Share

FUTUREPROOF WITH JONATHAN MCCR...

FUTUREPROOF WITH JONATHAN MCCREA

12:00-13:00

Share

OFF THE BALL

OFF THE BALL

13:00-17:00

Share

TECH TALK WITH JESSICA KELLY

TECH TALK WITH JESSICA KELLY

17:00-18:00

Share

SCREENTIME WITH JOHN FARDY

SCREENTIME WITH JOHN FARDY

18:00-19:00

Share

The Barry Egan Tapes

The Barry Egan Tapes

19:00-20:00

Share

BETWEEN THE LINES WITH ANDREA...

BETWEEN THE LINES WITH ANDREA GILLIGAN

20:00-21:00

Share

DOCUMENTARY AND DRAMA ON NEWST...

DOCUMENTARY AND DRAMA ON NEWSTALK

21:00-22:00

Share

BEST OF THE PAT KENNY SHOW

BEST OF THE PAT KENNY SHOW

22:00-23:00

Share

BEST OF THE HARD SHOULDER

BEST OF THE HARD SHOULDER

23:00-00:00

Share

BEST OF NEWSTALK

BEST OF NEWSTALK

00:00-07:00

Share

00:00:00 / 00:00:00

Share on