Newstalk is partnering with Make-A-Wish Ireland to celebrate Wish Week. Join us all week as we talk to some incredible children and their courageous families, and hear how Make-A-Wish Ireland have been beacons of light for children facing the toughest battles of their lives.

Make-A-Wish Ireland is dependent on the generosity of the public. You can donate online at makeawish.ie/donate.

Evelyn O’Byrne has Juvenile Batten disease - she was diagnosed when she was 6. She was able to go to Disney Land through Make-A-Wish and loved the experience.

Joining Seán to talk about her daughter’s illness and how they are doing is Evelyn’s mother, Jolene.