Fine Gael members yesterday met with the manufacturers of Skyclarys. The drug that slows the progress of the symptoms of the rare genetic disease, Friedreich’s Ataxia.
Speaking to Claire was Micheál Carrigy is FG TD for Longford Westmeath. Niamh Ní Hoireabhaird, a journalist from Kildare, who was diagnosed with Friedreichs Ataxia when she was 13 gave her reaction to the recent meeting.
