The oil was confiscated on its way into Heathrow airport
A Tyrone boy with ‘life-threatening’ medical condition is to be allowed Cannabis treatment after the British Home Office reportedly backed down on banning it.
Sinn Féin MP Órfhlaith Begley tweeted that she had “received official confirmation that Billy is going to receive his medication and it is on its way.”
On Monday, Charlotte Caldwell attempted to bring medicinal cannabis oil into Heathrow Airport for her 12-year-old son Billy but it was confiscated after in on a flight from Canada on Monday.
Billy was taken to Chelsea and Westminster Hospital in London on Friday after the frequency of his seizures increased.
Ms Caldwell said on Saturday that he had suffered two seizures overnight but he was now stable and asleep.
She said: "Billy had two more seizures overnight which is putting him further into a crisis situation," she said.
The British Home Office said it is in contact with doctors treating Billy and is carefully considering treatment options.
"This medicine was anti-epilepsy medicine,” Ms Caldwell said from outside the hospital.
“He has to have it every day. He needs it as soon as possible. We are hoping for a resolution today."
"I am confident we are going to get this done. The medical teams are working closely with the Home Office. We are praying for a miracle."
I’m delighted to say that I have just spoken with Charlotte to tell her that I have received official confirmation that Billy is going to receive his medication and it is on its way.— Órfhlaith Begley (@OrfhlaithBegley) June 16, 2018
Very relieved that our persistence has prevailed! @Keepbillyalive pic.twitter.com/EcWFDBOAGb
Sinn Féin MP Órfhlaith Begley welcomed "confirmation" that Billy would now get his treatment.
"Billy should never have been put in that position.
“The treatment was clearly working for him and he deteriorated badly once it ended, yet it still took intense lobbying to get the Home Office to reverse this cruel decision."
Ms Caldwell praised medical teams at the Chelsea and Westminster Hospital.
"The staff here have been amazing,” she said.
“He is getting the best medical care in the world. I cannot thank the staff at the hospital enough."
After a late night of negotiations with the Home Office I am hoping that today will be Billy’s day pic.twitter.com/w5wWpdZSZu— Órfhlaith Begley (@OrfhlaithBegley) June 16, 2018
Billy, who is also autistic, with pronounced communication difficulties, suffered back-to-back seizures on Friday after being seizure-free for more than 300 days when he was previously given the cannabis oil, according to his family.
He was given a prescription for medicinal cannabis oil last year to help treat his epilepsy - the first time the drug had been prescribed by the NHS.
But the boy's doctor was told by Home Office drug enforcement teams to stop prescribing the medication, which Ms Caldwell credits with keeping her son's seizures at bay.
The family had planned to return to Canada if they could not get the medicine in the UK but say Billy is now too ill to travel.
Surely, on humanitarian grounds alone, Billy Caldwell (12yrs old) should not have had his Cannabis oil confiscated by the Home Office. He is now in danger of losing his life.— David_Suchet (@David_Suchet) June 16, 2018
A British Home Office spokesperson said: "We are deeply sympathetic to the extremely difficult situation that Billy and his family are in.”
"Billy is in the care of medical professionals who are best placed to assess the care and treatment that he requires."
"The Home Office is contacting Billy's medical team.
"If the team treating Billy advise a particular course of urgent action, the Home Office will carefully consider what options are available to help facilitate that advice."
The Home Office has reportedly agreed to return medicinal cannabis to little Billy Caldwell this morning.— Daniel McCrossan MLA 🕊 (@McCrossanMLA) June 16, 2018
The prayers of thousands may just about to be answered.
Tremendous efforts have been made to have his medication returned.
I hope common sense finally prevails today!