Health minister to meet mother seeking cannabis medicine for her daughter

Vera Twomey's daughter, Ava, suffers from Dravet syndrome

Vera Twomey, cannabis, medicine, Dravet syndrome, Ava, Simon Harris

Simon Harris speaking to the media at Government Buildings | Image: RollingNews.ie

The Health Minister Simon Harris has agreed to meet with a Cork mother who is appealing for a cannabis-based medicine to treat her seriously ill daughter.

Vera Twomey's daughter, Ava, suffers from Dravet syndrome - a rare and incurable form of epilepsy which saw the six year old suffer 16 fits last Friday alone.

Her family say they fear her life is at risk without access to a new treatment that is not currently licenced here.

The family has been invited to meet Minister Harris next week.

She made this appeal earlier.

It comes almost two months after the mother of a young boy pleaded with the government to introduce legislation to make the cannabis treatment legal.

Yvonne Cahalane said she has had to move to America to get the treatment for her son Tristan (2), who suffers from Dravet syndrome.

"It's a complicated process, there isn't a medication that's out there, in the pharmaceutical industry at least, that can control it" she told Newstalk Breakfast.

"The seizures are long and they can end up to going up to 500 a day for some people".

She said her son was having up to 20 varying types of seizures a day, and that he was prone to a lot of injuries.

"We wanted to find something...out there that would work", she explains about what led them to the cannabis treatment.

"It's a cannabis oil - just the whole plant, so that you have the broad spectrum of all the compounds in the plant".