Roscommon boy with rare disease takes part in Dublin Marathon

Archie and his younger twin brothers suffer from Duchenne Muscular Dystrophy

Roscommon boy with rare disease takes part in Dublin Marathon

Archie | Image: Facebook/Join Our Boys Trust

An 11-year-old boy is having his dream come true as he competes in the Dublin Marathon.

Archie and his younger twin brothers George and Issac all suffer from the fatal disease Duchenne Muscular Dystrophy (DMD).

The genetic disorder is characterised by progressive muscle degeneration and weakness.

DMD is caused by an absence of dystrophin, a protein that helps keep muscle cells intact.

The Roscommon family and around 60 friends are taking part in the marathon on Sunday to raise funds and awareness for their trust called 'Join Our Boys'.

Image: Facebook/Join Our Boys Trust

Archie has been training for weeks to take part and is being pushed in a specially adapted buggy.

Their mother Paula Kerr says it has been an ambition of Archie's to do this.

"Archie is very aware of his situation - he knows he has a disease destroying his muscles, and he knows there's no treatment or cure.

"And that's very frightening when you're 11-years-old.

"And also it's very frustrating when your lofty ambitions are to play rugby or football for Ireland - or be a drummer in a rockband, and yet you can't keep up with your peers.

"That's really, really very difficult, as it would be for any of us".

A GoFundMe page has been set up for Archie, George and Issac. https://www.gofundme.com/joinourboystrust

Some 20,000 people are taking part in this year's SSE Airtricity Dublin Marathon.

It was won by Bernard Rotich of Kenya in an estimated time of 2:15:53, while Nataliya Lehonkova of Ukraine won the ladies title in 2:28:58.

Ireland's Patrick Monahan took the wheelchair title in 1:49:54.

Additional reporting: Gail Conway and Jack Quann